He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
- Isaiah 40:29-31

Thursday, August 13, 2009

Ice cream makes everthing better!

Today is Dairy Queen's miracle treat day. With every purchase of one of their delicious blizzards, a portion of the proceeds will go to support Children's Miracle Network hospitals like Johns Hopkins. What could be better than eating a blizzard and knowing that with each calorie loaded bite, you're helping sick kids like our boy Joshua! Now that's a reason to celebrate. I might just have to go twice today ;-).

And since I've started this post on a happy note and I really haven't had a happy post lately, I'm going to continue with the happiness. Joshua finally made counts on Monday and was able to go into the OR for a spinal tap. The spinal tap. The one that puts us into maintenance. Yes, M-A-I-N-T-E-N-A-N-C-E! That means we have another year from now and we're finished. I'm not getting too excited as it's still a long road and he has some chemo left that seems to be hard on his body but it does mean that we're getting there. Again. We've seen maintenance before and I liked it. It was comfortable and easier. Now, this time could be different as he's had a LOT more chemo and he'll be starting school in September. (insert Mommy smiling here) But, we're into maintenance and that means that if for some reason he doesn't make counts and can't get his chemo, we just skip it and keep going. No delaying, stopping or making up!

Now, on to the next topic. After Joshua fell last week and hurt his arm, I took him to see doctor #2. Doctor #2 was smart enough to cut the cast in case he started to swell. It's a good thing he did that as the next day, his arm was huge. So, we no longer see doctor #1 and doctor #2 has now become doctor #1. Did you follow that? And now for the best part. Today, we see the doctor and there is talk about the cast coming off. Yes, off. Just in time for our vacation...

Vacation. I said it. Okay so I wrote it but close enough. We leave on Saturday for a week at the beach. We are able to take this trip thanks to the Believe in Tomorrow Foundation. We will go and be able to do all the things that families should be able to do during the summer. We are so thankful for this opportunity. We'll even be able to get Joshua's blood counts down there and have the results faxed to Hopkins so that we don't have to waste a day coming home for a clinic visit. Now, just pray that Joshua stays in good health and that we don't have any unplanned fevers.

So there you have it. A happy post. I know. From the Czorapinski's. Who would have thought. Now go get some ice cream!!!


brenda said...

Yeah for you Joshua! On all of that "good" news. If any of this can be classified as good. Thanks Ami for keeping so positive and help the world see true inspiration. That was a hilarious post! I loved it! You know, we just got back from our little get-a-way camping vacation (somewhat - we hung out at the campground but still had a hotel to actually sleep in at night). Things went very well. Because I am so thankful that my child is happy and healthy, I did actually allow him to run and play out in the rain during the small storm we had, which by the way, also helped majorly get some steps over the storm phobias he has, and even in the back of my head when I said, Ok, I know he's going to catch a cold, and be sick, and there we are, I actually let him do it without freaking out too much. Then, I even let him dry off, change into PJ's with the other kids, and sleep at the campsite without me! Yes, without ME! Mom! He NEVER stays anywhere but home! He didn't even brush his teeth. Yup, I just let him be a boy for 1 whole night! And...you know I barely slept because of that worrying! But, like you say, Life is short, I couldn't deny him that opportunity. Always keeping you guys in our thoughts and prayers!